RSS

Tag Archives: Cancer

Caught Up in Charlotte’s Web

Cannabis_sativa_(Köhler)
Medical Marijuana or Cannabis
Picture: Public Domain

 

On our local news today was a story about this controversial treatment for those with severe illnesses.

The term  Charlotte’s Web was named after Charlotte Figi who has long suffered with multiple seizures and has revolutionized the thinking on the drug.

It has been around since 1996 in California and it was nearly passed here a week or so ago, losing by only a very narrow margin, by voters, who likely had little, or perhaps no idea, of the millions who could be helped by it.

Medical Marijuana or Medical Cannabis, as it is called, can give tremendous relief to those suffering from a wide variety of long-term diseases, or illnesses, like epilepsy and its accompanying seizures, all forms of end stage cancers, Parkinson’s disease, Multiple Sclerosis and others.

The drug is made from the oil of the plant and will be sold here in Florida, ONLY by legally authorized people.

The use of Medical Marijuana has for years been shown  to give comfort to those suffering with great pain.

The objections to approving this world-wide, as a former treatment Nurse, have always miffed me.

My son is a paraplegic and through out his life had to deal with a great deal of pain,.

Although he never used this, I knew many who did and do, to stop unbearable pain.

Yes, I came of age in L.A. in the late sixties, I was surrounded by all manner of drugs.

I never used them, they did not appeal to me.

But if my son had needed them and he was in extreme pain, I most certainly would have gotten them for him.

In this country, you can legally buy alcohol, get drunk and kill yourself and any number of others.

You can buy cigarettes that after a period of time, can cause cancer, which can also kill you.

You can buy a myriad of legally prescribed drugs which can quickly become addictive and ultimately destroy your life.

Think the TV Series, ” House. ”

The list is long, the point is, why this huge outpouring of fear on Medical Marijuana?

In California where it has been legal for many years, there are many more problems and deaths from all of the other forms of “legal drugs” than there are from this substance.

The situation is extremely sad, because many families and children especially, could be helped tremendously by this, yet those with the legal ability to do so, our Judges, are turning this legal process into a living hell, telling those who needed it,  “yesterday””  that they will have to wait even longer.

No amount of prescription pills can replace the same level of pain alleviation of Medical Marijuana, as children simply cannot take enough of them safely to get relief from their debilitating pain.

Not to mention the potential and possible deadly side effects of these powerful pills for a child.

It is time for the judicial system in this and other states to get on board with the medical community and do what is right for those who are suffering.

Everyone here has seen the pictures and the videos of the people on the Beach at Venice in California and are convinced that the entire state of Florida will become a “weed” version of a tawdry Cheech and Chong movie.

We have so many horrible accidents each year in Florida that are caused by those who drive drunk or the wrong way on our freeways.

It seems that no one was too worried about the dangers of alcohol and driving when they approved it to be sold in every state in the Country, all those years ago.

Apparently, just the name Marijuana makes people absolutely terrified of what might happen if it is allowed to be sold publicly.

Is it just possible that the real or true reason behind this aversion or objection to Medical Marijuana, might be that those who sell it will make money and greedy politicians and others, have not yet found a way to get their share of it?

Better yet, ask the parent of a child who is suffering from debilitating pain what they think.

They don’t care who makes the money, as long as their child is not one of those caught up in Charlotte’s Web.

 

Places to learn more:

Judge tosses out rules for ‘Charlotte’s Web’ medical pot

More than 3,000 new patients will soon have access to Charlotte’s Web

Charlotte’s Web – Wikipedia

Meet The Children Who Rely On Marijuana To Survive

 Charlotte’s Web medical marijuana program delayed 

Charlotte’s Web Of Suffering: Six-Year-Old Colorado Girl With Dravet Syndrome Finds Relief From Marijuana High In CBD

 

Advertisements
 

Tags: , , , , , , , , , , , , , , , , , ,

It Must Be Our Choice!

brittany
Brittany Maynard, an end-of-life choice advocate.
Picture credit: The Maynard family

 

On our news this morning was a story that needed to be shared.

As many of you by now know,  I am dealing with Cancer.

Mine is,  as far as I can see, likely under control.

The story this morning was about a very young girl,  whose was not.

She had stage four Brain Cancer and had been told by her doctor that she had six months to live.

This is news that no one her age should ever have to hear.

What she did after that point,  is why you must know about her.

Brittany Maynard lived in California and made the long trip to the state of Oregon to do, once again, what  no one her age should ever have to do, die.

California does not have the law that Oregon does called,  “Death with Dignity.”

In the interview this morning, Brittany expressed her feelings with enormous grace and courage.

Her strength in making this decision was way beyond her tender age.

I am not sure that in her position, I could have done it.

As a former Nurse in California,  I have cared for many Cancer patients and know the excruciating pain that they endure until they either recover,  or succumb to this ravaging disease.

My own mother in law passed away with the same disease, Brain Cancer.

She also did not live in a state with the law that Brittany used to choose her own path to dying.

My mother in law suffered terribly, had great pain and finally went into a coma from which she never recovered.

She lingered for a brief time and then she was gone.

Would she have, if allowed, have made the same choice that Brittany did?

We will never know.

When ever I spent time on the Oncology Ward, the sounds of pain were so very hard to hear.

Imagine how it must have been for those with the disease?

Someone who should know better,  this week told me that Cancer does not hurt.

I beg to differ with this person.

If it didn’t hurt,  why do nearly all of the patients in Oncology have Morphine drips?

But back to Brittany and her decision.

I may be in a minority here, what’s new, but my personal belief is that dying is each persons decision and no one should have the power to prevent,  or alter it.

Reaching the end of your life, whether as in Brittany’s case, or an elderly person who has had a long and full life, the decision as to when it should end,  should be theirs and theirs alone.

Anyone who disagrees with this,  needs to talk to those suffering with a terminal illness, or better yet, spend an hour or a day in an Oncology wing.

That should do it.

Dear Sweet beautiful Brittany, I did not know you, but I will support to my death,  your right to make that choice and you should not have had to,  in your time of suffering pain and illness,  have had to travel hundreds of miles away to another state,  to complete your final choice.

California and all states,  should recognize this situation and change it, now.

Every state in America needs to have a “Death with Dignity”  law.

I can nearly guarantee that it would happen instantly if and when,  any of those with the power to do it, had a beloved family member who was in Brittany’s  position.

America and  the world must admit that dying is extremely personal and how each of us does it, needs to be the patient’s choice.

We must each have the right to choose our own path to dying.

This is a Human Right and it MUST be our choice!

 

Places to learn more:

Brittany Maynard Could Revive the Stalled ‘Death With Dignity’ Movement

Brittany Maynard, terminally ill, takes own life

Brittany Maynard, 29-year-old right-to-die advocate with brain cancer, ends her life in Oregon

Brittany Maynard, advocate for ‘death with dignity,’ dies

Brittany Maynard – Wikipedia

The Brittany Maynard Fund

 

Tags: , , , , , , , , , , , , , , , , ,

Keytruda, this is personal!

montegobayjamica
Montego Bay, Jamaica.
The perfect combination for skin cancer.
First melanoma came just 2 years later!

 

Unless you have had a melanoma, this story may have slipped right by you in the paper.

I on the other hand, did see it this morning, while going through the week’s papers to go out for recycling.

This new Cancer drug made by Merck, was just approved by the FDA and may save countless lives, mine included.

If you have seen my Bio picture, you may have noticed that I am fair skinned with blond hair and blue eyes.

A desirable combination some may say, just not in my case.

After my second melanoma was diagnosed many years ago, I was sent to an LA Cancer Specialist who was part of the Kaiser Foundation which I was covered by in California.

His words still ring in my ears to this day,  ” if you had stayed in Indiana with that skin and coloring,  you might have had a chance, but you came here and baked in the California sun and this is what happens. “

What followed were 8 more melanomas and a total of 22 moles removed.

Melanomas run in families and are genetically linked,  which puts my children at great risk now.

Lucky me, I have what is called Dysplastic nevus syndrome, which means that every mole on my body, and there are many, wants  to become a melanoma when it grows up.

I know when they are bad, I have spent a lifetime looking at mine and those of many others.

For the next 15 years, I was the star patient of the Chief of Dermatology in the Panorama City Kaiser Hospital.

He loved my case, it was such a challenge just to see what would happen next.

He was an excellent Doctor, we became good friends and I adored him.

But back to this new drug I have just learned about today, Keytruda.

If it does what it promises, many melanoma patients whose cancer spreads, may just have a fighting chance.

If melanoma is a new word to you, it is a deadly skin cancer and once it has spread to your lymph nodes, you are a goner.

The lymph system immediately sends all those nice little melanoma cells throughout your body.

BAM,  game over.

If you or a loved one has melanomas, which by the way has now become the deadliest form of skin cancer, for the love of God, tell them to ask their doctors about this new drug.

I will include many links below about skin cancers, melanomas especially and how to check your moles, this is critical if you are to  survive.

Also included will be the who, what, why and where of this new drug and what it will cost, as well as other helpful information.

I hesitated to write this today because it is so very personal, but what if one of you could be helped or even saved because of something you learned from this story?

That is why it is here.

I also want to address one more issue related to my melanomas and this will be especially personal and may shock you,  or bother you to read.

I apologize in advance for doing it, but as said in the paragraph before, some one might benefit from this information.

Several weeks ago, I made an appointment with a local doctor to go in for a check on my mole situation.

I know when they are bad, I have spent a lifetime looking at mine and those of many others.

And right now, I have a bad one and it needs to come off.

Anyway, I made an appointment and was set to see this doctor three days ago.

As always because procrastination is my middle name, I waited until the day before my appointment to fill out the new patient forms that had been mailed to me.

As I was wandering around in them, I started thinking, what if all of this is going to cost a small fortune?

I no longer had the wonderful “free coverage” of Kaiser Permanente in LA.

I am now responsible for any and all costs incurred in my health care.

Me!

So, I  called the number on an ad that had recently come from AARP with an invitation to enroll in their Supplemental Plan.

I had avoided this for several reasons in the past.

Here is what you do not know about this retired Treatment Nurse.

I despise, in no particular order, doctors, pills and medicine in general, when it comes to me.

I refuse to take pills for just about anything or everything.

I have not made a Doctor’s appointment since I left LA in 1999.

With my Cancer diagnosis, that is truly stupid.

But we simply did not have the money and I did not want to go hunting for a replacement for the wonderful man who took care of me in California.

I trusted no one!

So, I did nothing!

I hid my head in the sand and pretended that I would be fine.

Anyway, back to the supplemental plan from those nice people at AARP.

It all sounded good, I was ready to jump in and sign up.

I had a new Doctor lined up, an appointment made and a plan chosen to cover what Medicare did not.

Life was good.

So, then I went back to the forms and began to fill them out.

Uh oh!

Got to the page of what they accepted for payment or Insurance.

I had already asked about Medicare and they said that was accepted.

What I did not ask about was a supplemental.

Well you guessed it, there it was on the page of plans they took, they did not accept AARP.

Just to be completely sure, I called their office and asked.

She was adamant.

They did not take AARP as a supplement.

You must remember that for 30 years of my life I had Kaiser, they was never a charge for a single thing.

To say that I had grown complacent, is an understatement.

When I left LA and Kaiser in 1999, I was uncovered for the first time in my adult life.

What happened next was stupid, I admit it.

I called the office back and cancelled my appointment, saying that if they did not take AARP, I would have to cancel, not knowing how much the charges could amount to.

Dermatology care and treatment can be VERY expensive.

My appointment was for the next day, I said and there was no way I could go through that list of supplemental plans they do accept and pick one by then, I had to cancel.

I will not comment on her cold response, but it was not very kind.

Now, I have no Doctor, no appointment and must start all over looking for new ones of each~

I admit I was hot-headed about it, yes.

And procrastinating contributed greatly as well, but one thing sticks in my craw right now.

I have worked all of my life, since I was 9 with a paper route, paying into my SS.

I have never used it before now, so this first attempt being a most negative experience, is not a very good beginning.

Oh well, I will spend next week trying to sort it all out and get back on track.

I sincerely apologize for this ridiculous overindulgence of writing and beg for your forgiveness in having to read it.

BLAH,  BLAH,  BLAH!

Hopefully, I will not need this new drug, Kytruda, and yes this is personal.

 

Places to learn more:

FDA approves Keytruda for advanced melanoma

FDA approves first-of-its-kind melanoma drug

Melanoma

Dysplastic nevus syndrome

Genetic mutation linked to melanoma progression

‘A single mole caused cancer to spread through my body – now I only have months to live’

Merck Wins Approval to Sell the First in a new Type of Cancer Drug 
The costs are here!

FDA OKs Merck drug, 1st in new cancer drug class

UCLA Researcher Provides Insight Into the Impact of Pembrolizumab in Melanoma –

FDA approves new cancer-fighting drug

High melanoma risk found in airline crews exposed to high-altitude radiation

 

 

Tags: , , , , , , , , , , , , , , ,

No Limits!

DR_SK%20Dikshit
Doctor Sharadkumar Dixit
Picture credit:  Kindly allowed by Som

 

There have been few stories or postings or persons,  that I have written about in my life, that brought me to tears as I wrote them, this one did!

As some/many of you may already know,  my son is a paraplegic, so the life and struggles of this brave, stubborn, willful man, struck close to my heart.

One thing that they both have/had in common is/was that they refused to let life in a wheelchair hold them back, or limit the fullest potential of their lives.

They both did precisely what they were driven to do.

What this Plastic Surgeon, this Doctor to the most poor of India and even the world,  chose to do with his life after a horrific car accident left him paralyzed, a heart that was less than 20% functional, barely surviving cancer of the larynx, that left him unable to speak and the continuing threat of an imminent cerebral hemorrhage, in my humble opinion, suggests nothing less than the mark of a Saint.

Doctor Sharadkumar Dixit, or Dicksheet, was nominated eight times for the Nobel Peace Prize, but never won.

However, along his lifelong Humanitarian Journey,  he did collect a massive, most impressive list of other awards and accolades for his unselfish devotion to those with nothing to offer him, but their deepest gratitude.

The Doctor returned to India every year for six months,  to hold free plastic surgery camps, for those with cleft lips, or cleft palates in dire need of repairing, to throngs of hopeful waiting crowds that would impress even a Rock Star.

In over forty years, this amazing Doctor performed more than 300,000 surgeries from the confines of his wheelchair and was called, ” the fastest plastic surgeon in the world.”

He lived quite meagerly in a tiny Brooklyn apartment and survived mostly on social security.

Doctor Dixit was born Dec 13, 1930 in Chandarpur, Maharashra, India and died in Flushing, New York, November 14, 2011.

As to be expected, this diligent, devoted Man of Medicine, was considered a God in India, to those whose lives he changed forever.

He gave them back their smiles.

As you can see, this remarkable man’s life knew NO LIMITS!

 

Places to learn more:

A video tribute to Dr. Dixit

When the Scalpel calls

Magical Fingers at work for the disabled

A cut above the rest

Farewell to a hero – Dr. Sharadkumar Dicksheet

Doctor who was Saint of Smiles

Plastic surgeon, Nobel Prize nominee Sharadkumar Dicksheet, MD, dies at 80

 

 

Tags: , , , , , , , , , , , , , , , , , , , , , , , ,

 
Kids Gallore

Food, Fashion & Health For the Little Ones

Never Backward

"There is no substitute for reputation. It is like virginity, once lost, you cannot take it back.... " --Mirriam Defensor Santiago"

A walk in my shoes

Fashion coffee and everything in between ...

Lynn Thaler

Weird and Random Thoughts

STEVEN JAMES HUMPHREYS

ORIGINAL POEMS AND QUOTES ABOUT LIFE

BLOG DA UNIQUE

Devaneios, devaneios...

Quarksire

Q's werld a werld of introspection retrospectyion complication, yet simplicity overiding all so to see the reality is only but to lewk upon it with a gentle gaze. Unto Infinity and Beyond.

cryptogin

Analyzer of Monsters

D-ale copilăriei

"Toţi fugim după copilăria noastră. La 12 ani fugim după zmee. Pe urmă fugim după sufletul nostru de copil". (Francis Blanche, 1921 -1974)

"OUR WORLD"

Working together to make the world a better place to live! A fine WordPress.com site

I Know I Made You Smile

cartoons/humor/fiction/nonfiction

osarobohenry

Just another WordPress.com site

Cornish Chough

Notes of a Naturalist

Umesh Kaul

Traveler!!!! on the road

AMERICA ON COFFEE

Americans' daily coffee ritual.....A communal enjoin!

"William's Window"

"Poetry & Rhymes" by William Hancock

on the road with Animalcouriers

pet transport through Europe and beyond

Emilio Cogliani

Environmental Care , Web Insights and Emerging Trends

The Sanguine Sol

Thoughts In Words

Eye-Dancers

A site devoted to the Young Adult sci-fi/fantasy novel The Eye-Dancers

overcomeabuse

How I Survived Sexual Assault and Domestic Violence

Animalista Untamed

The only good cage is an empty cage

In my own opinion

What is expressed in this blog is of my own opinion, unless otherwise specified.

International Wildlife Bond

Protecting Wildlife and Conservation

The Fifth Column

"News and views from around the world"

rakuttendi.com

always learn a lot from facts and logic that can be done and analyzed for the purpose of change @rakuttendi